Steroids

Unless you know about Konner's visit with the best doctor ever, Dr. Butaud, I'm sure your mind is wondering. Steroids? What about them? Yep, I know...when you hear the word steroids, you think of the '5 foot nothing guy, walking around reds with a black muscle shirt advertising the last body building contest he entered but did not win, with his veins protruding out of his biceps'. I know, GROSS! But nope, that's not what this post is about. (Even though I could ramble all day about how much those guys disgust me)

Konner is on steroids, again. Blah! This time it's a dissolvable tablet once a day for seven days. Dr. Butaud wants to try that on top of the antibiotics that he will be on for three weeks. Yes, three weeks. Twice a day for 21 days. That's what the bottle says. Now granted, I want him to get better. But I'm not in the least bit thrilled about "drugging" my child for three weeks. And I'm also not thrilled about the fact that we have to use saline spray and suction his nose 10-15 times a day. Do you know how miserable that must be for him? Can you imagine how raw his nose will be?

Our visit was quick and to the point yesterday. I think the majority of that has to do with the fact that doctors refuse to communicate with each other. Dr. Butaud has no idea about Konner's crazy journey. He had no clue that he was hospitalized once, more less 3 times. He had no clue that he has constant bouts of bronchitis and other breathing problems. He didn't even know that he has a nebulizer.

Now I'm not putting any of the blame on Doc. After all, he is my favorite. :) I'm just tired of starting over. I'm tired of trial and error every time we see a new doctor. Damn it...I'm tired of going to the doctor.

It's extremely heart breaking when you walk into a doctors office and your innocent child's face goes from one extreme to the other. He knows. He knows that the man or woman in the white coat is going to poke and prod him. He knows that he will get a long stick down his throat. He knows that they will look into his aching ear. It's sad. Really sad to see that look on your child's face when there's nothing you can do to help them understand.

I'm tired of it. I'm ready for my little boy to be happy. To feel healthy. To be able to be himself.

Here we go...again!

Have you read the title of my blog? Have you read it carefully?

"I love my crazy, tragic, sometimes almost magic, awful, beautiful life."

Yep...that sums it up alright. And today was another one of those crazy days.




This is what we woke up to...

You guessed it! He's sick again. But this time it's serious. (Not that any of the other times weren't)

After a visit with Dr. Papp we have this...

-A severe ear infection. Severe meaning that it is corroding his ear drum. Ring a bell? It's my childhood all over again.

-Two eye infections. (Yes, again)

-And wheezing.

I know, I know. It sounds like every other time. But this time we are finally getting somewhere. Dr. Papp recommended that Konner sees and ENT. Finally! Maybe this will answer our questions. So...Dr. Butaud, HERE WE COME!

But that wasn't the final answer. No...they had to poke and stick and...Ugh! My poor child.

According to Dr. Papp, the only medication that will relive Konner of this congestion and fluid build up is an antibiotic shot. He received one this morning and has to go back tomorrow and Friday for two more. They also took an insanely large amount (I though he was going to pass put on the table) of blood to test for Immune Deficiency Disorder. Finally. This was mentioned before, but never done.

Oh, and for those of you wondering...we received his allergy results. The only thing that came back was milk. Which we already knew about. It was more of a confirmation I guess. It's only a slight allergy. On a scale of 0-6, it's a 1. So...nothing to freak out about, but enough to be cautious. My only concern with this being the only thing he's allergic to???? WHY IS HE ALWAYS SICK? I really thought the allergy test would give us answers. But nope. It's back to square one.

So here we go. Another journey into the mysterious immune system of Konner. :)

An Angel is born

Those that follow my blog remember me mentioning sweet Kayleigh and her family. Kayleigh's story is one that I have been following for some time now. She was a beautiful little girl that fought so hard for her life.
As I previously mentioned, she passed away after a long battle with numerous complications. Her memorial was Sunday and her father, Adam, posted about it here. There are three videos included that are absolutely amazing. (But I promise they will have you in tears) He also included pictures of the pink balloon release and images from Now I Lay Me Down to Sleep. (An organization that I hope to be a part of one day.)

Enjoy the update, videos, and pictures of Kayleigh and her family. Please keep them in your thoughts and prayers. I couldn't imagine going through something so devastating. And I give my ultimate thanks to Adam and Aimee for being so strong. Strong enough to keep us updated throughout Kayleigh's journey.

Weekend Update

Who would have thought? That after our crazy weather this weekend...today would be so beautiful! That's Louisiana weather!!!

Our weekend was once again, quite eventful. We dodged sun, we dodged rain, we dodged cold. Crazy!

I wasn't very satisfied with the original pictures that I took for Konner's birthday, so we attempted a re shoot at Sugar Mill Pond. (Take that River Ranch!) They came out a little better, but not great. It was almost 90 degrees outside and Konner wasn't having it. After he decided to nose dive off of a step, we knew it was time to go.

Saturday night was pretty interesting. After a few nights of Konner fighting his sleep and waking up a lot, I decided to try teething tablets again. (I'm not a big fan of giving him Motrin a lot) On the bottle, it clearly states that the tablets will relieve pain caused by teething and your baby will more than likely sleep for a longer period of time. This is due to the fact that they are comfortable. Well, apparently Konner is that 1% that has the opposite effect. It was very obvious that he was free of pain. His eyes were very heavy and he had a constant smile on his face. (You know...the look of a drunk man eyeing that hot girl) 8:00 pm is his usual bedtime. Still awake. 9:00 pm...still awake. Around 9:30 I noticed he was in "la la land" and just taring at the TV. So I rocked him a bit and put him to bed. Yeah right! He was not ready. He cried and screamed. So I stopped playing Farm Town went get him and rocked him again. Still not sleepy. So Konner and I played farm town until 11:00pm. Yes...my baby went to sleep at 11:00 pm! Needless to say, he slept all night. (Thank God!)

Now...to find something that he will eat besides Macaroni and Yogurt.

Our My plans for Sunday were to sleep as late as possible Konner would allow and head back to Sugar Mill Pond for one last attempt. And Yay!...it worked. Konner was in the best mood and we took awesome pictures. (Despite the cold and misty weather)

After pictures, we headed to Kristin's (Ben's girlfriend) graduation party. After seven years of college she is now a graduate. Congrats!

Did I mention that it was 55 degrees this morning? Louisiana...May...55 degrees...doesn't make sense!

Easy Stir Fry

Looking for a quick and easy meal? Here's something that may help. Quick and easy stir fry! Thanks to Kikkoman Stir Fry sauce.

Get in your car (or truck, or SUV, or minivan) and drive to your favorite store. (Mine is Target) Make your way to the Asian section and pick up a bottle of Kikkoman Stir Fry sauce. Grab a pack of stew meat and your favorite veggies. I used frozen vegetables. (the kind in the bag)

On the label you will find step by step instructions on how to make stir fry. And let me tell you...it is YUMMY!

I simply followed the directions and added my own veggies. Being a picky eater, I only added meat, carrots, snow peas and broccoli. But I'm pretty sure the possibilities are endless. In the future I will definitely throw in scallops and who knows what else.

Weekend Update

Update: I am finally able to upload pictures. Not sure what the issue was, but here ya go...

Apparently you will hear all about my weekend madness on Tuesdays. I just can't seem to find the time to post anything on Mondays. Today is a little less stressful but still busy so I will make this short and quick.

My weekend was very eventful. (Which should be no surprise) It was Mother's day of course. But it was also Eric and Allie's wedding. Their wedding took place at Sunny Meade in Scott. It was absolutely beautiful.

My first Mother's Day was wonderful! I couldn't ask for anything better. We spent the whole day by the pond and relaxed. What more could I ask for.

And on a more somber note...upon logging into Facebook this morning, I saw a post from a guy named Adam who also has a blog here on Blogger. His sweet little girl Kayleigh has been fighting for her life after being born premature and weighing just one pound. Her struggle has been tough and she unfortunately couldn't go anymore. She took her last breath shortly before 10 pm last night. Please keep her family in your prayers as they face this tough battle. You can read more of Kayleigh's story here.

Weekend Update

I know it's Tuesday, but it's never too late for a weekend update. Right?


I've come to the conclusion that I love summer...warm days, family time, days at the park...but it's exhausting. So much to do. We are 'booked' just about every weekend for the next couple of months. Whew! This weekend was no exception.


Friday night was a last minute trip to the bowling alley with Dwight and Sarah. Something we never do. (It was obvious by our scores)



We definitely needed that. It was so much fun!

Saturday was the March of Dimes walk. The weather was perfect and the walk was great. But one thing I realized is that I'm sooooo out of shape. (I was feeling the 3 miles Sunday) The Walk was a great success and it went to a great cause. Thanks again to everyone who helped with donations. It is much appreciated.

And Sunday...Wow! What a day. I had it all planned out to take these adorable pictures of Konner for his birthday invitations. Well, he had other plans. He just wasn't having it. I ordered him a birthday cake and everything. Let's just say that I won't be posting these pictures anytime soon because they need lots (and lots) of editing. Thanks God for Photoshop!

When Pigs Fly

Yet another busy weekend behind us. And another one is on the way. Thanks to the horrible weather last night, I'm pretty tired on this gloomy Monday. I will post the usual "Weekend Update" later, but for now I want to bring up this Swine Flu drama.

As of this weekend there are 7 confirmed cases in Louisiana, 5 of those in Lafayette. It is almost certain that it will be raised to the top of the six-point scale and declared a full flu pandemic according to WHO . I know officials are doing everything in their power to make the right precautions while keeping everyone safe and calm but is that enough?

In my opinion, they can only do so much. The public needs to take action. If you, your child, or a family member has a chance of being infected, please be cautious. Don't take school closing as a chance for a vacation. Dont go to the mall or to a restaurant. Have common sense to get tested and quarantine yourself. Be courteous to everyone around you. I sure in the hell don't want this flu. And it scares me to know that a simple trip to Target can be fatal to my family. Especially my son who seems to get sick just by looking at someone.

I could ramble on and on about how serious this is and how people aren't doing the right thing but I just don't have time. (And I'm sure you already know) So, I will end it here. I hope this is solved sooner rather than later. Afterall, I'm not ready for more setbacks in my life.